Health Studies Australian National Data Asset

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About

The Health Studies Australian National Data Asset (HeSANDA) program is a national initiative of the Australian Research Data Commons (ARDC) and is supported by National Collaborative Research Infrastructure Strategy (NCRIS). It is a collaboration of 9 HeSANDA nodes that represent over 70 health research organisations. South Australia leads one of the 9 national ‘Nodes’.

The research community across Australia has been working together through HeSANDA to develop Health Data Australia, a catalogue for health and medical researchers to register a description of their research so it’s easy to discover. A federated structure of partners across Australia then links researchers and facilitates data sharing and data access.

The Health Data Australia Platform was launched on July 18 2023 at the South Australian Health and Medical Research Institute (SAHMRI). The project team is now focusing on recruiting additional trials, building awareness of the platform, and exploring the expansion of the scheme to include other types of health research.

 

The Challenge

Health research is a national priority. Australia has a world-class health research industry thanks to significant investment in both research and the translation of health research to benefit the wider community. The driving force behind this pipeline from health research to impact is data and evidence-based healthcare improvements.
 
The national data landscape for health research is rich, diverse and complex — spanning multiple sectors, jurisdictions and data modalities. The sensitive nature of health data, combined with privacy and regulatory requirements, means there is a critical need for digital research infrastructure that can support secure and seamless national-scale research.
 
The data collected across health studies and registries is valuable for guiding clinical practices, informing the design of new studies, and can be utilised in new analyses to generate new research findings.
 
Despite this, the sharing and reuse of health data is not standard practice or efficiently achieved.

The Impact

The HeSANDA program and the infrastructure behind the Health Data Australia platform enhances the visibility of investigator-initiated clinical trials, improves the availability of research data for secondary use, maximises the return on investment of past and future research and ultimately improves health outcomes for Australians.

HTSA's Role

HTSA leads the South Australian Node of the project.
 
The Node community continues to work together to share ideas and resources, and avoid duplication.

Platform Team

SA Node Steering Committee

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Wendy Keech

Health Translation SA

Dr Karen Best

SAHMRI

Kelly Loffler

Flinders University

Prof John Beltrame

The University of Adelaide

A/Prof Stephanie Reuter Lange

University of South Australia

Dr Elsa Dent

Torrens University

Dr Gerry O'Callaghan

The University of Adelaide

Ben Shores

SA Health

Prof Chris Karapetis

Southern Adelaide Local Health Network

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