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Indigenous Data Sovereignty and Governance in South Australia
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Led by Associate Professor Odette Pearson, Wardliparingga Aboriginal Health Equity Unit, SAHMRI, this project is guided by the SA Aboriginal Community Controlled Organisation Network (SAACCON).
Aligned with the priority reforms at the centre of the National Agreement on Closing the Gap, this project aims to improve data accessibility and information sharing, empowering informed decision-making and ultimately enhancing health and wellbeing outcomes within these communities.
An iterative approach will explore literature and establish a shared understanding across the Aboriginal community-controlled sector of Indigenous Data Sovereignty (IDS) and Indigenous Data Governance (IDG). This will lead to the development of principles and resources outlining the required information and steps for implementing IDS and IDG in South Australia, theoretically applied to health-related case studies.
This project will help pave the way for Indigenous Data Sovereignty and Governance in health, both in SA and nationally. Aboriginal and Torres Strait Islander individuals and communities will gain the agency to determine the collection, assessment, and utilisation of Indigenous data, promoting the health and wellbeing of these communities.
Indigenous Data Sovereignty (IDS) and Indigenous Data Governance (IDG) capacity building will provide an opportunity for the Aboriginal Community Controlled sector, government and the non-government sector to analyse data and build baselines to understand the current state and existing gaps. IDS and IDG in collaboration with the knowledge and experience of Indigenous people in Aboriginal and Torres Strait Islander communities, government and stakeholders, provides an opportunity to shape key priorities and inform future planning and developments to further support the South Australian Aboriginal Community Controlled sector.
Health Translation SA (HTSA), alongside SA Health (Digital Health SA) and the Commission on Excellence and Innovation in Health (CEIH), acknowledge the critical importance of Indigenous Data Sovereignty within an effective learning health system.
HTSA will continue to work with its partners to implement the recommendations of the Indigenous Data Sovereignty and Data Governance Report in healthcare and medical research systems. This report will also guide HTSA's Connected Care Project and wider data initiatives across SA.
HTSA has funded this project with support by the Australian Government’s Medical Research Future Fund (MRFF) as part of the Rapid Applied Research Translation program. (MRF9100005).
South Australian Health and Medical Research Institute
North Terrace
Adelaide SA 5000
PO Box 11060
Adelaide SA 5001
We acknowledge the Kaurna people as the traditional custodians of the Adelaide region, we recognise the Kaurna peoples cultural, spiritual, physical and emotional connection with their land.
We honour and pay our respects to Kaurna elders, both past and present, and all generations of Kaurna people, now and into the future.
